Friday, March 21, 2014
I wish I could go back to those moments when Taylor was born and whisper in my ear about all of the love, joy, and laughter that is to come. I wish I could wipe away my tears while showing pictures of how much Taylor will look like her daddy. I wish I could hold my hand and say quietly how we would never change this for the world.
Taylor has made me, and Brian, different people. I am not the person you knew before I had Taylor. I love stronger, care deeper, and I have Taylor to thank for all of that. Take a couple of minutes to watch this video today. It says it all.
Tuesday, March 18, 2014
I can't believe that this Friday is World Down Syndrome Day again. Time has just been flying by, as you may have been able to tell since it has been SO LONG since our last post.
Things are going really well with Taylor lately. She has been a very happy, healthy girl since we had her adenoids removed almost a year ago now. The days of her having chronic sinus infections look like they are behind us! This has really made a difference in other areas as well. Since she is not always sick now we have seen great improvements in her development!
Taylor continues to be the light of the room everywhere we go, and will let you hear of it if you do not pay attention to her!
Taylor also got her orthotic inserts several weeks ago as we continue to work with her on her walking.
Because believe it or not - Taylor will start going to school in April (getting on a bus and everything!).....
So right now we are mainly focused on finishing with our birth-to-three program before she transitions being under the care of the school district. As soon as she turns three she will be receiving her therapies through the school district during the day at school.
But don't let that fool you - We have been able to fit in some wonderful family time, bowling, walks and wonderful times with friends!
Friday, May 31, 2013
Friday, March 22, 2013
I am guessing many of you have wondered where we have been and what we have been up to since it has been awhile since our last blog post. We haven't meant to be so quite on our little blog, but Taylor has kept us busy!
Our crazy little toddler has been keeping us on our toes with all of her news skills. Taylor is climbing up the first two steps of our stairs, crawling around the house like a maniac, tormenting Erwin, and signing up a storm! She has start to sign to us without us prompting her, so now we know if she is tired, hungry or wants more of something. It is pretty awesome!
Yesterday was World Down Syndrome Day and we celebrated Taylor with style! Brian had a fundraiser at work for his D.A.D.S. group (Dads Appreciating Down Syndrome) and raised just over $1,000. Then after work we had a pizza party with friends and Taylor knew she was the center of attention. Life is good and Taylor is amazing!
Thursday, February 7, 2013
Saturday, November 10, 2012
Friday, October 26, 2012
Thursday, October 11, 2012
Monday, October 1, 2012
I was just forwarded this from my Godmother.
A Blue Rose
Having four visiting family members, my wife was very busy, so I offered to go to the store for her to get some needed items, which included light bulbs, paper towels, trash bags, detergent and Clorox. So off I went.
I scurried around the store, gathered up my goodies and headed for the checkout counter, only to be blocked in the narrow aisle by a young man who appeared to be about sixteen-years-old. I wasn't in a hurry, so I patiently waited for the boy to realize that I was there. This was when he waved his hands excitedly in the air and declared in a loud voice, "Mommy, I'm over here."
It was obvious now, he was mentally challenged and also startled as he turned and saw me standing so close to him, waiting to squeeze by. His eyes widened and surprise exploded on his face as I said, "Hey Buddy, what's your name?"
"My name is Denny and I'm shopping with my mother," he responded proudly.
"Wow," I said, "that's a cool name; I wish my name was Denny, but my name is Steve."
"Steve, like Stevarino?" he asked. "Yes," I answered. "How old are you Denny?"
"How old am I now, Mommy?" he asked his mother as she slowly came over from the next aisle.
"You're fifteen-years-old Denny; now be a good boy and let the man pass by."
I acknowledged her and continued to talk to Denny for several more minutes about summer, bicycles and school. I watched his brown eyes dance with excitement, because he was the center of someone's attention. He then abruptly turned and headed toward the toy section.
Denny's mom had a puzzled look on her face and thanked me for taking the time to talk with her son. She told me that most people wouldn't even look at him, much less talk to him.
I told her that it was my pleasure and then I said something I have no idea where it came from, other than by the prompting of the Holy Spirit. I told her that there are plenty of red, yellow, and pink roses in God's Garden; however, "Blue Roses" are very rare and should be appreciated for their beauty and distinctiveness. You see, Denny is a Blue Rose and if someone doesn't stop and smell that rose with their heart and touch that rose with their kindness, then they've missed a blessing from God.
She was silent for a second, then with a tear in her eye she asked, "Who are you?"
Without thinking I said, "Oh, I'm probably just a dandelion, but I sure love living in God's garden."
She reached out, squeezed my hand and said, "God bless you!" and then I had tears in my eyes.
May I suggest, the next time you see a BLUE ROSE , whichever differences that person may have, don't turn your head and walk off. Take the time to smile and say Hello. Why? Because, by the grace of GOD, this mother or father could be you. This could be your child, grandchild, niece , nephew or any other family member. What a difference a moment can mean to that person or their family.
From an old dandelion! Live simply. Love generously. Care deeply. Speak kindly. Leave the rest up to God!
"People will forget what you said, People will forget what you did, but people will never forget how you made them feel!"